The Essential Guide for Families with Down Syndrome Plans and Actions for Independence at Every Stage of Life The lifespan of people with Down syndrome has more than doubled since the '80s and many are now outliving their parents. This invites opportunities and obstacles. Yet many families are unsure what to do and how to get started. This award-winning (Nonfiction Authors Assoc Gold Award 2023) guidebook provides step-by-step support to: Inspire mindset shifts toward one of independence and possibilities Foster independence building blocks from the earliest age Highlight health risks and financial resources every family must know Detail education and work options to promote and community inclusion Evaluate family- and community-based home options with a search process The Guide presents action items and worksheets to equip you with a clear timeline and path. The Resources and references sections will save you time and money in your search for information and organizations that support your family's journey. "As parents, we are the experts of our loved ones, and this is an excellent resource in navigating our own decisions to better support the goals and dreams of those we love." Tara Goodwin, D.O., Adult Down Syndrome Clinic, QuestCare Dallas Friedman intersperses relatable and inspiring stories from a wide array of families. Insight from many experts in the fields of communications, education, health, and financial planning provide the confidence and guidance for you to navigate your family's path toward independence. It is never too early, nor too late. Start your journey today!