The Ethics and Governance of Human Genetic Databases

Name: The Ethics and Governance of Human Genetic Databases
SKU: 21463435
Price: 101.99 AUD
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European Perspectives

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Paperback / softback

Series:

Cambridge Law, Medicine & Ethics

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Description

The Medical Biobank of Umeå in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or lifestyle information. They are resources for research in human genetics and medicine, exploring interaction between genes, lifestyle, environmental factors and health and diseases. The collection, storage and use of this data raise ethical, legal and social issues. In this book, first published in 2007, bioethics scholars examine whether existing ethical frameworks and social policies reflect people's concerns, and how they may need to change in light of new scientific and technological developments. The ethical issues of social justice, genetic discrimination, informational privacy, trust in science and consent to participation in database research are analyzed, whilst an empirical survey, conducted in the four countries, demonstrates public views of privacy and related moral values in the context of human genetic databases.

Author Biography:

Matti Häyry is Professor of Bioethics and Philosophy of Law at the University of Manchester. Ruth Chadwick is Distinguished Research Professor at Cardiff University. Vilhjálmur Árnason is a Professor of Philosophy and Chair of the Centre for Ethics at the University of Iceland. Dr Gardar Árnason is a Lecturer in Professional Ethics at the University of Central Lancashire.

Release date Australia

October 10th, 2013

Author

Audience

Professional & Vocational

Pages

296

Series

Cambridge Law, Medicine & Ethics

Dimensions

152x229x16

ISBN-13

9781107652576

Product ID

21463435

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