This book is about the Woodbury family's journey with a rare form of muscular dystrophy (DM) - Myotonic Dystrophy. Because this disease affects so many systems in the body and therefore it can look like other diseases, it is hard to diagnose. Four children and my husband have DM. My husband was 43 years old when he was diagnosed, our oldest was 20 and our youngest was 7. Even the doctors didn't know all of the effects of DM. One of the more perplexing effects of the disease are to the brain. Reading this book will take you on our journey of understanding this disease and its effects on my family members.
Author Biography
I am a petite 60 year old woman with a lot of energy and passion. When, in 1998 my husband and four children were diagnosed with a rare form of muscular dystrophy (DM), I found what motivated me. I wanted to channel my energy and passion into understanding this disease and its effects on my family. I am also a part-time specialist for Salt Lake County Extension answering nutrition and food safety questions for the county public. My hobbies include selling Avon, practicing yoga, watching select TV series with my husband, going to plays, making jewelry, cooking foods with good taste and nutrition, yard work, etc.
