The Data Protection and Medical Research in Europe: PRIVIREAL series represents the results of this EC-funded project examining the implementation of Directive 95/46/EC on data protection in relation to medical research and the role of ethics committees in European countries. The series consists of five separate volumes following the complete development of the PRIVIREAL project. This volume relates to the second stage of this project and is concerned with the setting up and role of research ethics committees. It assesses their legal responsibilities, especially with regard to data protection matters and contains reports from more than 20 European countries on these issues. Focusing on the theoretical role and practical operation of research ethics committees and the impact of relevant international and national instruments, this volume will be an essential resource for all those concerned with data protection issues in medical research.
Author Biography
D. Beyleveld is Professor of Law, Sheffield Institute of Biotechnological Law and Ethics, Department of Law, University of Sheffield, UK, D. Townend is at the Maastricht University, The Netherlands and J. Wright is at the Sheffield Institute of Biotechnological Law and Ethics, Department of Law, University of Sheffield, UK. Deryck Beyleveld, David Townend, Jessica Wright, Peter Rehak, Guy Lebeer, Genevieve De Boeck, Sylvia Tomova, Lukas Prudil, Josef Kure, Mary Rosenzweig, Lisbeth Knudsen, Toomas Veidebaum, Lasse Lehtonen, Ritva Halila, Brigitte Feuillet-Le Mintier, Matthias Kettner, Tina Garanis-Papadatos, Dimitris Boukis, Judit Sandor, Deirdre Madden, Maeve McDonagh, Roberto Lattanzi, Asta Cekanauskaite , Eugenijus Gefenas, Pierre Mallia, Bert Gordijn, Vigdis Kvalheim, Patrycja Bong-Polec, Pawel Lukow, Helena Moniz, Sonia Fidalgo, Rafael Vale e Reis, Rosalvo Almeida, Octavian Doaga, Jozef Glasa, Jane Miller, Joze Trontelj, Carlos Maria Romeo-Casabona, Pilar Nicolas, Elisabeth Rynning, Stephen Baker, Susan Wallace.
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