[A] valuable addition to the literature on chronic paediatric illness... The book provides an in depth understanding of the path through chronic illness, illustrating the obvious effects on the child, but also the parents, siblings and the family as a whole across the spectrum from the psychological and social to the physical... There is much to be learnt from this book and it deserves careful reading.'
- from the Foreword by Hilton Davis, Emeritus Professor of Child Health Psychology, King's College London
Parents of children with chronic illnesses experience 'extreme parenting'. Parenting under extreme circumstances, like an extreme sport, challenges us to find our true strengths, to push ourselves physically and emotionally.
This book is a guide and a source of support for parents of children with long-term illnesses. Sharon Dempsey argues that by helping parents to cope with their child's condition we are ultimately helping the child, and that parents are better able to live a full, enjoyable life if they have an awareness of strategies and knowledge to cope with the difficulties of dealing with their child with a chronic illness.
The guide is packed with practical advice, models of exploration and lists of action points, and will empower parents to be good advocates for their children. It will also provide health professionals with invaluable insights into the demands of living with chronic illness.
Sharon Dempsey graduated from Queen's University Belfast in 1991 and completed a postgraduate diploma in newspaper journalism at City University, London. She works as a health writer and freelance journalist. Her first book, My Brain Tumour Adventures: The Story of a Little Boy Coping with a Brain Tumour, also published by Jessica Kingsley Publishers, was written for her son Owen who was undergoing treatment for a brain tumour. Owen died in March 2004 at the age of six. Sharon lives in Belfast with her husband Liam and two daughters Kate and Sarah.